Academic & Research Partnerships
Academic Partnerships
EDS Canada Foundation is honoured to be working in an official partnership with McMaster University School of Rehabilitation Science, Masters of Occupational Therapy program by providing clinical Coop Student Placements to broaden the understanding of needs in the Ehlers-Danlos Syndromes (EDS) patient population. Through the lens of EDS, healthcare students are gaining a deeper understanding of what Chronic Pain is and the extent of needs that exist.
EDS Canada Foundation welcomes new Academic Partnerships inquires.
Research Partnerships
EDS Canada Foundation is working with a multidisciplinary team of medical professionals from across Canada and internationally, to improve understanding of difficult to diagnose chronic pain diseases. The outcomes of this work will help to bridge gaps in evidence based diagnostic and treatment criteria of a broad group of chronic pain diseases, utilizing connective tissue disorder Ehlers-Danlos Syndromes (EDS), as a model of optimal care.
EDS Canada Foundation engages with the EDS/HSD+ community for participation in research to support further studies. For current Research Studies that are looking for your voice click here.
EDS Canada Foundation membership with Research Canada ($1.2K annually) to support engaging Canadians living with Ehlers-Danlos Syndromes and chronic pain in research and translating research results that will lead to the development of care pathways to help reduce the high cost of healthcare.
EDS Canada Foundation supports CanChild as subject matter experts on an EDS & pediatric occupational therapy exploratory study to advance understanding of clinical practice for children and youth and contribute to the development of resources and inform further research.
Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis (ICanCME) Research Network 2.0 – ME/CFS EDS/HSD+ study with co- Investigators, Alain Moreau, PhD, Director with patients as partners and leaders. The first is the Network’s tradition of Patients as Partners -“Nothing about us, without us.” This Network embraces the reality that those with lived experience are key to accelerating research. They have helped research teams design and implement safer, more respectful and more accurate studies. Our patient partners are recognized as leaders and experts at every stage of the work – EDS Canada Foundation partner with $5K in 2025 & 2026
EDS Canada Foundation is an active Affiliated member and in-kind patient-engaged research partner of the EDS Society International Consortium Allied Health Working Group.
Chronic Pain Network
It all begins with HOPE in having your Patient-Voice heard through advocacy and research EDS Canada Foundation partnership with the Chronic Pain Network.
