Ehlers-Danlos Syndromes Canada Foundation has submitted to the UN Committee on the Rights of Persons with Disabilities Review of Canada’s Implementation of the Convention on the Rights of Persons with Disabilities – 2025. The Canada’s approach to disability is based on sympathy for well-recognized visible medical conditions. This approach is not effective for Ehlers-Danlos Syndromes which are conditions that are not well recognized by the health care system and are not generally regarded with sympathy.
We would like to thank the UN Committee for the opportunity to put forward issues facing Canadians living with Ehlers-Danlos Syndromes (EDS). We would also like to thank the National ME/FM Action Network, which works on behalf of Canadians with Myalgic Encephalomyelitis, Fibromyalgia or both, for making us aware of this opportunity. There is frequently overlap between ME, FM and EDS.
To read the submission, please click here.
