Affiliate Membership
As an Affiliate Member, The EDS Canada Foundation will:
- Provide access to on-line Community of Practice Resource Library. Our Resource Director can assist you in accessing medical journal articles, Canadian Ehlers-Danlos Syndromes CME accredited Conferences video presentations from multidisciplinary international experts. For our Resource Director, please email: [email protected]
- Provide valuable handouts for your patients.
- Provide scientists, researchers and healthcare professionals with administrative time and support in the review and writing of Letters of Support (LOS) for grants you may be applying for;
- Will support knowledge dissemination activities in your research.
- Will provide non-profit organizations with opportunities to collaborate on program activities where synergies exist.
- Access to our Client Navigators (EDS Canada Ambassadors) to assist with supporting your patients.
- Information on our Virtual Support Groups and Wellness Sessions that provide additional supports to your patients.
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Please Note: All requests for research participants are to be provided for review of our Research Committee and after approval all promotional material is to be provided as a word document with the limit of 2 images including logos to [email protected]
Resources
Clinicians, we are here to assist you with resources:
- A quick reference guide for Clinicians with QR Code for your Patients
- Exam Room Body Map with Community of Practice (Zotero) Instructions
- hEDS Diagnostic Criteria
- Chronic Pain Diseases
- Day and Night Posture Control in hEDS/HSD
- EDS Overview
- Tips to Exercise with Joint Hypermobility
- Joint Hypermobility Exercise Handout
- Difficult Day Handout
- Self Report Form
- Medication Schedule Form
- Declaration of Montreal- Pain Management is a Human Right
- EDS-HSD Emergency and Surgical Planning Template
For our Resource Director, please email: [email protected]
Healthcare Professionals Directory Registration
EDS Canada Foundation provides an online resource directory of Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HSD), Heritable Connective Tissue Disorders (HCTD) and Chronic Pain Canadian health professionals.
It is understood that inclusion in the directory does not constitute an endorsement by EDS Canada Foundation, but is provided as a resource to the EDS/HSD/HCTD and Chronic Pain community in Canada, and to health professionals interested in treating people living with EDS, HSD, HCTD and their related disorders, including Chronic Pain.
By submitting this form, health professionals certify they are licensed to treat patients and are familiar with EDS, HSD, HCTD’s and their related disorders and are willing to treat patients who may be living with these conditions.
Please email: [email protected] to sign up
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