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Canadian Medical Professionals

Commitment to Care and Professional Support

The EDS Canada Foundation is deeply committed to supporting primary care, specialists, and allied medical professionals in the treatment and care of patients living with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and related chronic pain conditions. We believe that by bridging the gap between clinical research and daily practice, we can ensure every Canadian affected by these complex conditions has access to the highest standard of care.

Resources and Support for Professionals:

To fulfill this commitment, we provide a variety of tools and collaborative opportunities designed to assist healthcare providers in navigating the complexities of EDS:

  • Continuing Medical Education (CME): We host an Annual Conference specifically for primary care practitioners and specialists. This event features expert presentations on diagnosing and managing complex health issues and chronic pain.
  • Clinical Tools and Handouts: Our website provides practical resources to streamline patient care, including:
    • hEDS Diagnostic Criteria and clinician-facing handouts.
    • Specialized templates for medication scheduling and surgery planning.
    • The Hypermobility Assessment Tool (HAT app) for standardized measurement.
  • Educational Archives: Access to a library of CME conference videos and recorded presentations to stay updated on the latest clinical advances and research.
  • Patient Advocacy Support: We offer resources that help patients better communicate their symptoms, such as Body Maps and Self-Report Forms, which facilitate more efficient and effective appointments for the clinician.
  • Collaborative Research: We actively grant research funds and engage in knowledge-dissemination partnerships to advance the understanding of heritable connective tissue disorders within the Canadian medical community.

Our Vision: To work collaboratively with regional and international organizations to bring healthcare research, education, and clinical care together, ensuring those affected by EDS receive the latest advances in care.