Overview
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About Us
A little bit about The ILC Foundation, operating as EDS Canada Foundation.
The “ILC” abbreviation is “Improving the Lives of the Community” living with Ehlers-Danlos Syndromes, and related conditions including chronic pain.
Our Mission
To help Canadians overcome the challenges of living with Ehlers-Danlos Syndromes and related conditions, including chronic pain through knowledge-sharing resources, awareness, education, wellness support and research to find cures.
Our Vision
To inspire hope and contribute to the health and well-being of Canadians living with Ehlers-Danlos Syndromes and related conditions including chronic pain.
Our Values
The EDS Canada Foundation values are centered on collegial cohesive collaborations to improve support services for Canadians with Ehlers-Danlos Syndromes and Chronic Pain.
What We Do
EDS Canada Foundation is a CRA registered charity, operating under The ILC Charitable Foundation, serves the Canadian Ehlers-Danlos Syndromes (EDS) and chronic pain community. We are the national advocate for those affected by this hereditary and complex disease. Established in 2010, we have worked collaboratively with regional and international organizations to bring health care research, education and clinical care together to ensure those affected by EDS have access to the latest advances in care.
By engaging in activities aligned to EDS Canada Foundation’s core programs (Awareness, Support and Research), we work towards:
- Developing patient education and bringing patients together in peer -to-peer support
- Granting research funds; and collaborating for external research projects
- Increasing awareness of EDS throughout annual campaigns and activities in Canada
- Advocacy

Get Involved
EDS Canada Foundation was established to help those living with Ehlers-Danlos Syndromes and related conditions, including Chronic Pain. Please contact us to learn more.