A Canadian EDS Documentary – A Real Disease. Not Imaginary.
Save the date: Thursday, May 28, 2026 – 3:00 to 5:00 pm EST
Dr. Gail Ouellette, PhD, Genetic Counsellor, and founder of the Regroupement québécois des maladies orphelines (RQMO), also known as the Quebec Coalition of Orphan Diseases—an organization that supports people living with Ehlers-Danlos Syndrome (EDS) in Quebec—has produced a documentary film on the condition with support from EDS Canada Foundation – together the RQMO and EDS Canada Foundation have advocated for over 16 years.
The film gives a voice to both patients, healthcare professionals, and charities highlighting the ongoing lack of recognition of EDS in Canada. The documentary will be made available online following the release date.
Stay tuned for registration Information …