Please join us in our annual Walk’n Wheel-a-thon taking place in May- EDS Awareness Month Register now
It’s estimated that more than 126,000 Canadians live with hypermobile Ehlers-Danlos Syndromes (hEDS).
Regardless of a diagnosis, EDS Canada is here to support you through your journey.
EDS Canada Foundation is a CRA registered charity, operating under The ILC Charitable Foundation, serves the Canadian Ehlers-Danlos Syndromes (EDS) and chronic pain community. We support Canadians going through the diagnosis and management of hereditary Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HSD), and related connective tissue disorders, including chronic pain. Programs help individuals overcome the challenges through knowledge-sharing resources, awareness, education, wellness support and research to find cures.
EDS Canada Foundation organizes and funds the following programs in support of its strategy to raise awareness about Ehlers-Danlos Syndromes affecting 1 in 300 Canadians and the 1 in 5 living with chronic pain, and children are not spared. For more information on the conditions, we financially support, please learn more below. For Resources and Programs for these conditions, please visit our Support Services tab.
Ehlers-Danlos Syndromes (EDS) are a group of rare inherited conditions that affect connective tissue. Connective...
Chronic pain is pain that does not go away after three months. Chronic pain can be persistent and varying in degrees of...
EDS Canada Foundation Annual Conference is for primary care practitioners and physician specialists who encounter patients with complex health issues and chronic pain that may or may not be related to Ehlers-Danlos Syndromes, Hypermobility Spectrum Disorders (EDS/HSD+).
Conference presentations are available under our Videos on the Annual Conference page.
Nicoleta, our Health Resource Consultant, asked her pharmacist if tariffs could impact drug availability for people with EDS. The answer?
Health Canada has published a nationwide recall alert for one lot of JAMP-Pregabalin 50 mg bottles, because some bottles may contain 150
The incurable medical condition that ended the professional hockey career of a first-round Winnipeg Jets draft pick is a disorder
EDS Canada Foundation was established to help those living with Ehlers-Danlos Syndromes and related conditions, including Chronic Pain. Please contact us to learn more.
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