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The EDS Canada Foundation’s programs aim to support the 1 in 300 Canadians living with hypermobile Ehlers-Danlos Syndromes, and the 1 in 5 living with chronic pain where they often are misunderstood and under supported, leaving them to feel alone and isolated.

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The EDS Canada organizes and funds the following programs in support of its strategy to raise awareness about hypermobile Ehlers-Danlos Syndromes and chronic pain, and children are not spared:

  • Canadian Ehlers-Danlos Syndromes continued medical education conference and Community Wellness Day (accredited by McMaster University, University of Toronto, and Northern Ontario School of Medicine); and
  • In partnership with McMaster University School of Rehabilitation Sciences Masters of Occupational Therapy Program, we offer 1st and 2nd students co-op placements; and
  • Collaborative research, including funds to find cures; and
  • Wellness support to connect individuals to available services.

The EDS Canada Foundation’s approach has and continues to impact change by helping individuals to feel understood and cared for in their community, and to feel less isolated in the condition they live with.

Through EDS Canada Foundation’s awareness and education programs, systemic barriers to care are being identified with ongoing discussions with multiple stakeholders to break down those barriers. Stakeholders include community care access organizations, schools, departments of continued medical education, and, ministries of health.