Videos

Welcome to Our 2024 Conference: Understanding EDS/HSD+ Symptomology, Diagnoses and Treatment

Recognizing hESD & HSD, Differential Diagnoses | Dr. Andrew Maxwell, MD, Pediatric Cardiology

Q&A with Dr Andrew Maxwell

Integrative Clinical Management of hEDS and its Common Comorbidities | Dr. Brayden Yellman, MD

Q&A with Dr. Brayden Yellman

Less Studied Comorbidities in Infection-Associated Chronic Illnesses | Beth Pollack, MIT

Quality of Life Indicator of Misunderstood Symptomology of EDS/HSD | Dr. Kim Daniel, M.ED, PhD

Q&A with Dr. Kim Daniel

Changing the Field of Medicine for EDS/HSD+ and Associated Conditions | Dr. Stephanie Grach, MD, MS

Thanks for Watching our 2024 Conference: Understanding EDS/HSD+ Symptomology, Diagnoses & Treatment

ILC Breakthrough

Dr. Jordan Jones & Dr. William Black, Establishing a Road Map to Overcome Barriers to EDS Care

Dr. Gabi Schaffzin, Graphic Pain Scales Barrier or Aids: A Historical Overview

Dr. Ahmad Hasan, EDS & Women’s Health, What We Know

Dr. Sally Pezaro, Midwifery, Hypermobile EDS During Pregnancy, Birth and Beyond

Nelly Faghani, Physiotherapy, Pelvic Health Physiotherapy in EDS and HSD

Dr. Bryan MacLeod, Challenges of Chronic Disease from a Patient and Healthcare Perspective

Dr. Virginia McEwen, Mast Cell Activation Syndrome – Pain and Neurological Manifestations

Patient Engagement Presentation: Beckie

Patient Engagement Presentation: Catherine

Patient Engagement Presentation: Lisa

Q&A with Dr. Bryan MacLeod

Dr. Alain Moreau, Molecular Medicine, Advancing Myalgic Encephalomyelitis Research to Transform Healthcare

Q&A with Dr. Alain Moreau and Catherine

The Norris Lab: EDS Research Q&A with Dr. Norris & Dr. Gensemer

Q&A with Dr. Virginia McEwen & Beckie

Dr. Louis Liu, Gastrointestinal Manifestations in Patients with Ehlers Danlos Syndromes

CBD Pain Management in EDS/HSD

Dr. Peter Vadas, Advances In Our Understanding Of Mast Cell Activation Syndrome

Dr. Philip Peng, Spontaneous Intracranial Hypotension: Challenges In Managing SIH Patients

Dr. Ian Carroll, The Problem Of The Chronic Post-Dural Puncture Headache

Interactive Speakers Panel with Afternoon Presenters, Pain: Shedding Light on Inequities of Health

Interactive Speakers Panel with Morning Presenters, Pain: Shedding Light on Inequities of Health

Dr. Clair Francomano, Diagnosing Hereditary Disorders Of Connective Tissue

Dr. Farnaz Amoozegar, Neurology, Spontaneous Intracranial Hypotension: A Focus On Clinical Characteristics

Dr. Linda Gray Leithe, Neuroradiology, Spontaneous Intracranial Hypotension: Avoiding Misdiagnosis

Dr. Wouter I. Schievink, Neurosurgery, Spontaneous Intracranial Hypotension: From Gene to Surgery

Dr. Roseann Seviour, Spontaneous Intracranial Hypotension

Christina Pridmore, Osteopath, An Introduction to Integrated Functional Exercise

Dr. John Baird, Chiropractic, Linking Hypermobility Pain Disorders with Their Multi-Systemic Comorbidities

Kevin and Kathleen Muldowney, Physiotherapy, Our Evaluation of Patients With Ehlers-Danlos Syndrome – Part 1

Kevin and Kathleen Muldowney, Physiotherapy, Our Unique Approach to Treating Patients with Ehlers Danlos Syndrome – Part 2

Dr. Hance Clarke, The UHN GoodHope Ehlers Danlos Syndrome Clinic – Yesterday, Today and Tomorrow

Dr. Pradeep Chopra, Managing Pain in EDS: Connecting the Dots – Part 2

Dr. Scott Walsh, Part 2: Ehlers Danlos Complex Dermatologic Features and Issues

Dr. Pradeep Chopra, Managing Pain in EDS: Connecting the Dots – Part 1

Dr. Andrew J. Maxwell, Part 1: The Embryology, Potential Mechanisms That Tie Together The Pentad

Dr. Andrew J. Maxwell, Part 2: Pentad Assessment & Management Pearls

Dr. Paula Harvey, CSS Position Statement on Postural Orthostatic Tachycardia Syndrome

Dr. Scott Walsh, Part 1: Ehlers Danlos Complex Dermatologic Features and Issues

CSF Flow at Niagara Falls Neurosurgery Conference: Chiari Malformation Overview and Patient Engagement Panel Discussion

CSF Flow at Niagara Falls Neurosurgery Conference: EDS Overview and Patient Engagement Panel Discussion

CSF Flow at Niagara Falls Neurosurgery Conference: Syringomyelia Overview and Patient Engagement Panel Discussion

CSF Flow at Niagara Falls Neurosurgery Conference, Chiari Malformation Overview and Patient Engagement Panel Discussion

CSF Flow at Niagara Falls Neurosurgery Conference, EDS Overview and Patient Engagement Panel Discussion

CSF Flow at Niagara Falls Neurosurgery Conference, Syringomyelia Overview and Patient Engagement Panel Discussion

Dr. Peter Vadas, Mast Cells Gone Wild – Mast Cell Activation Disorders

Dr. Nimish Mittal, Advancing the Clinical Practice of EDS in Canada – Current and Future Directions

Brianne Burton, Physiotherapy, Physiotherapy for Hypermobility EDS

Jaisa Sulit , Mindfulness-Based Stress Reduction and Chronic Pain

Patricia E. Meegan, Physiotherapy, Physical Therapy and Ehlers-Danlos Syndrome – What? How? Why?

Dr. Lawrence B. Afrin, Mast Cell 101

Ingrid Cheung, Mast Cell Research

Dr. Kim Daniel, Psychology, Tools & Support for Living with EDS

Christina Pridmore, Osteopath, In Common Thinking in Physiotherapies in EDS

Dr. W. Mark Erwin, Chiropractic, Biological Therapy for the Degenerative Disc

Jessica Nargi, Physiotherapy, Pelvic Floor Physiotherapy

Raoul Englebert & Nicoleta Woinarosky, Physiotherapy, EDS in Children & Adults

Dr. Bryan MacLeod, Managing Care Where No EDS Clinic Exists

Chris – Patient Engagement Presentation

Denise – Patient Engagement Presentation

Dr. Blair P. Grubb, Autonomic Dysfunction & Chronic Fatigue in EDS

Dr. John Mitakides, Dentistry, TMJ Manifestations in EDS

Dr. Roberto Mendoza, Overview

Dr. Roberto Mendoza, Challenges in EDS

Gail Ouellette, PhD, EDS Needs Assessment

Dr. Hannah Faghfoury, EDS Research

Dr. Colleen McDermott, EDS & Disorders of the Pelvic Floor

Dr. Myles Koby, Neuroradiology, Imaging Cervical and Cranio-Cervical Instability in Connective Tissue Disorders

Dr. Fraser C. Henderson, Neurosurgery, Differential Diagnosis of Headaches in the EDS and Chiari Population

Dr. Sandrine de Ribaupierre, Neurosurgery, Re-Tethered Spinal Cord in EDS

Christina Pridmore, Osteopath, Exercise Approach to the Management of EDS

Dr. Juan Guzman, Autonomic Function Impact in Ehlers Danlos Syndrome

Dr. Scott Walsh, Ehlers Danlos Syndromes Dermatologic Features and Issues

Dr. Roberto Mendozo, EDS Clinical Service Update

Dr. Clair Francomano, Ehlers Danlos Syndrome: Genetics and Multi-Disciplinary Management

Dr. Fraser Henderson, Neurosurgery, Neurological Manifestations of Hereditary Hypermobility Connective Tissue Disorders

Dr. James Rutka, Neurosurgery, Neurological Manifestations of EDS

Dr. Myles Koby, Neuroradiology, Cervical Spine Instability Connective Tissue Disease Imaging Evaluation

Dr. Peter Vadas, A New Disease Cluster: Mast Cell Activation Syndrome, Postural Orthostatic Tachycardia Syndrome and Hereditary Connective Tissue Disorders

Dr. Peter Rowe, General Pediatrics and Adolescent Health in EDS

Dr. Juan Guzman, Postural Orthostatic Tachycardia Syndrome in Ehlers-Danlos Syndromes: The Missing Link

Dr. Fraser Henderson, Neurosurgery, Neurosurgical Management of Hypermobility Disorders

Dr. Myles Koby, Neuroradiology, Initial Neuroradiologic Evaluation in Ehlers-Danlos – What Your Neurosurgeon Needs

2014 Primary Care Leadership: Physicians and Patients Speak – English

Primary Care Leadership: Les medecins de patients parlent – French

Dr. Kim Daniels, Psychology, Bone Health Matters

Marli Brown, MSW Communication is Key

Dr. Howard Meng, EDS Heterogeneity: A Foray into the Diagnostic Dilemma

Difficult to Diagnose Diseases: Ehlers-Danlos Syndrome 2nd Annual Canadian Conference – Question & Answer Session

Dr. Norm Buckley, Conference Chair Opening Remarks

Madison – Patient Engagement Presentation

Gail Ouellette, PhD, Physicians and Patients Speak

Dr. Roberto Mendoza, Molecular Genetics in EDS

Dr. Clair Francomano, Clinical Diagnosis in EDS

Michael Healy, PT Developing Best Practices for Complex Chronic Pain Diseases: A Unique Pain Management Treatment for Ehlers-Danlos Syndromes – A Manual Therapy Approach

Dr. Roberto Mendoza, Difficult to Diagnose Disease Scientific Workshop – Developing Best Practices for Complex Chronic Pain Diseases: Molecular Genetics and Ehlers-Danlos Syndromes

Dr. Clair Francomano, Difficult to Diagnose Disease Scientific Workshop – Developing Best Practices for Complex Chronic Pain Diseases: Clinical Genetics and Ehlers-Danlos Syndromes

Gail Ouellette, PhD, Difficult to Diagnose Disease Scientific Workshop – Developing Best Practices for Complex Chronic Pain Diseases: Clinical Genetics and Rare Diseases

Dr. Fraser Henderson, Difficult to Diagnose Disease Scientific Workshop – Developing Best Practices for Complex Chronic Pain Diseases: Neurosurgery

Dr. Juan Guzman, Difficult to Diagnose Disease Scientific Workshop – Developing Best Practices for Complex Chronic Pain Diseases: Postural Orthostatic Tachycardia Syndrome (POTS)

Get Involved

EDS Canada Foundation was established to help those living with Ehlers-Danlos Syndromes and related conditions, including Chronic Pain. Please contact us to learn more.