Diagnosis can be the longest detective mission.
It’s estimated that more than 126,000 Canadians live with hypermobile Ehlers-Danlos Syndromes (hEDS).
Regardless of a diagnosis, EDS Canada is here to support you through your journey.
About Us
EDS Canada Foundation is a CRA registered charity, operating under The ILC Charitable Foundation, serving the Canadian Ehlers-Danlos Syndromes (EDS) and chronic pain community. We are the national advocate for those affected by this hereditary and complex disease. Established in 2010, we have worked collaboratively with regional and international organizations to bring health care research, education, and clinical care together to ensure those affected by EDS have access to the latest advances in care.
By engaging in activities aligned to EDS Canada Foundation’s core programs (Awareness, Support Services and Research) we:
- Develop community of practice patient education and bring people together in peer-to-peer support
- Deliver Wellnes Support Services
- Grant research funds; and collaborate on external research projects
- Increase awareness of EDS through annual campaigns
- Advocate
What We Fund
EDS Canada Foundation organizes and funds the following programs in support of its strategy to raise awareness about Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders affecting 1 in 500 Canadians and the 1 in 5 living with chronic pain, and children are not spared. For more information on the conditions, we financially support, please learn more below. For Resources and Programs for these conditions, please visit our Support Services tab.
Ehlers-Danlos Syndromes
Ehlers-Danlos Syndromes (EDS) are a group of rare inherited conditions that affect connective tissue. Connective...
Chronic Pain
Chronic pain is pain that does not go away after three months. Chronic pain can be persistent and varying in degrees of...
Conference News & Registration
EDS Canada Foundation Annual Conference is for primary care practitioners and physician specialists who encounter patients with complex health issues and chronic pain that may or may not be related to Ehlers-Danlos Syndromes, Hypermobility Spectrum Disorders (EDS/HSD+).
Conference presentations are available under our Videos on the Annual Conference page.
Latest News and Client Stories
Have a Story to share?
EDS Canada Foundation works to promote equitable access to healthcare across Canada. We share personal stories to help raise awareness, advocate for change, and illustrate the real impact of health system gaps. Please complete this form if you would like to share your story with us. This helps ensure that we use your information responsibly, in line with Canadian privacy law.
Get Involved
EDS Canada Foundation was established to help those living with Ehlers-Danlos Syndromes and related conditions, including Chronic Pain. Please contact us to learn more.