Living Well with EDS Program

EDS Canada Foundation’s EDS Living Well With EDS Program is to provide educational resources to help Canadians living with EDS/HSD+, and Chronic Pain to create a balance between school, work, self-care and leisure activities.

We know that living with Ehlers-Danlos Syndromes, its related conditions including chronic pain can be isolating and difficult to manage. The following resources are meant to assist members in their self-advocacy needs for access to care for themselves or for family members. We encourage individuals to discuss these resources with their medical team. We have included videos from past patient education to help you in your self management of your EDS/HSD+. 

The Living Well with EDS/HSD+ Booklet was created by Occupational Therapy Student’s from McMaster University, with support from our leadership team, our Wellness Ambassadors and most importantly from everyone with lived experience. Download your copy which includes forms and templates, activity sheets and helpful links: Living Well With EDS/HSD+ Booklet 2025

Also, please look at booking a Wellness Session for additional resources or participating in our Virtual Support Group.

For support and resources in French, please see our partner: Constellation – troubles héréditaires du tissu [email protected] Support group : https://www.facebook.com/groups/soutien.constellationthtc Facebook page : https://www.facebook.com/constellationthtc Website: https://www.constellation-thtc.org