A Canadian EDS Documentary – A Real Disease. Not Imaginary.

Save the date: Thursday, May 28, 2026 – 3:00 to 5:00 pm EST
Dr. Gail Ouellette, PhD, Genetic Counsellor, and founder of the Regroupement québécois des maladies orphelines (RQMO), also known as the Quebec Coalition of Orphan Diseases—an organization that supports people living with Ehlers-Danlos Syndrome (EDS) in Quebec—has produced a documentary film on the condition with support from EDS Canada Foundation – together the RQMO and EDS Canada Foundation have advocated for over 16 years.

The film gives a voice to both patients, healthcare professionals, and charities highlighting the ongoing lack of recognition of EDS in Canada. The documentary will be made available online following the release date.

For registration … Click Here

EDS Walk’n Wheel-a-thon Registered Cities (Host a walk in your city and province by emailing [email protected])
• Barrie – May 28th @ 5:00 pm at Georgian College, One Georgian Dr., Barrie, ON L4M 3X9

• Burlington – May 28th @ 5:00 pm at Empact Wellness, 3325 Harvester Road, Unit 8, Burlington, Ontario, L7N 3N2

• Thunder Bay – May 31, 2026 @ 1:00 pm – 3:00 pm (please arrive by 12:30 pm)
Meeting Point: Boulevard Lake Park, 400 W, Lyon Blvd. Thunder Bay  A at the parking lot closest to the Playground

Click to register to attend the walk or sponsor a walk team.

Funds raised support EDS advocacy, education and wellness support programs.

• For second year, EDS Canada Foundation exhibit booth at The Pri-Med Canada conference in Toronto – providing resources at one of the largest annual inter-professional CME/CE conferences in the country, attracting over 2,500 primary care healthcare professionals to its in-person event. The event features, 3 days of CME, over 200 exhibitors, and peer-to-peer networking with more than 200 medical organizations.
• Over 200 Wellness Sessions per month helping people with resources to improve quality of life and reduce feelings of isolation.
• Providing coop placements through our academic partnership with McMaster University School of Rehabilitation Sciences Masters of Occupational Therapy Program.
• The Canadian EDS Documentary – A Real Disease. NOT Imaginary.
• Research to find cures.