Living Well with EDS Program
Additional Documents
- Clinician Handout
- Resources for your Clinician
- hEDS Diagnostic Criteria: Questioning if you have hEDS? This form allows your doctor to review your symptoms and assess you.
- Self Report Form: Arrive at the doctors and have challenges communicating? This form allows you to explain the reason for your visit, update symptoms and make good use of the limited time available.
- Medication Schedule Template: Having challenges remembering what meds you are taking and why? This form will aid you in keeping track and also help communicate the medications to avoid with EDS/HSD+
- EDS Overview
- EDS/HSD+ Surgery Planning Template: Need a template to plan for your upcoming surgery or for family when you can’t? This resource is completely modifiable for your co-morbidities.
- Day and Night Postures: Find that you wake up in pain? This posture sheet can help.
- Chronic Pain Disease Definitions
- Exercise with EDS/HSD: Exercise is key in managing EDS/HSD+.
- Exercise Handout from CHEO
- Difficult Day Handout: A resource list for you to put together your Difficult Day Kit. Helpful for the bad days when your body wants to stay in bed.
- Declaration of Montreal: Pain Management is a Human Right: A declaration that aids in advocating for pain management.
- Body Map with Related Conditions: A great resource showing common conditions to aid in explaining the complexity of EDS/HSD+
- Provincial Advocacy Directory: A directory of each province and territory’s health contacts to aid in obtaining care.
- Hypermobility Assessment Tool: This tool has been created by the Good Hope Clinic to measure your Hypermobility. It is available for download in the Google Play Store and in the App Store